Peripheral neuropathy

Hi Giardino and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

That's great news that you're cancer free but I'm sorry to read that you fell and broke your hip.

The online community is divided up into different support groups and I can see that you've already found and joined the womb cancer group which would be a great place to ask questions, share experiences and get support from others who have or have had the same type of cancer as you.

When you feel ready to post there just click on the link I've created and then start a new post in the same way as you did here. You can also join in with existing conversations by clicking on 'reply'

Another group that you might like to join is the life after cancer group which is for cancer survivors and people who have finished treatment to discuss things like the physical and emotional after effects of cancer, returning to work, or trying to move on with your life.

It would be great if you could pop something about your diagnosis and treatment so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

This link will take you to a blog which explains how to get the best out of the online community but if you have any difficulty navigating the community just drop me a reply and I'll be pleased to help

x

My mobility suddenly ended a year ago. And before that I was shielding anyway. So really about two years ago my life came to a halt. I still can not really walk much further than my bathroom. I am only 66 and they have no idea what is causing it. If it is indeed permanent I just do not know how or if I am going to deal with it. My cancer has been a mere sideshow. (so far). Fortunately I have a loving caring wife but I am a huge burden for her and she is not young either and beginning to weake. God help us all. Sorry I can't be more cheerful.

Hi Simon, having a cancer diagnosis and treatment during a pandemic has been exceptionally nasty, hasn’t it!  I am starting to see the light at the end of the tunnel and wonder if my experience might help.

First of all, I expected to get better quickly.  My kind GP spent time with me on a telephone consultation advising that it could take two years rather than a couple of months. He suggested a diet rich in protein and a trial of iron and vitamin supplements, to see if that helped.  He also stressed the importance of getting outside every day if possible and having plenty of rest.

Eventually I started to think I needed some exercise. My physiotherapist advised caution as I am prone to falling over. I can only walk with support and was keen to give up the wheelchair and crutches.  With her approval I got two rollators, one for indoors and one for the garden.  I found the local ‘mobility centre’ assistants very knowledgeable and helpful.  I now can get around with more independence and have also invested in a lightweight rollator to take in the car.

Recently I realised that  after all the enforced inactivity I had lost muscle strength and flexibility.  Local classes were not suitable or accessible so I checked out seated exercises for seniors on the  internet. Once again I got approval from my physiotherapist.  I enjoy selecting on line exercises to give myself a bit of a challenge.  They are available whenever I feel like doing them and I have added some seated yoga for relaxation.

I am hoping the tearful outbursts and negative feelings are in the past.  The local authority have just approved my application for a blue badge and I am looking forward to outings with easier parking.

It’s the uncertainty and lack of control that are depressing don’t you think?  Patience and a plan could help……

I have taken a lot from your thoughtful reply that might help myself so thankyou. I sent my zimmer frame back and progressed to crutches !

Glad you are making progress. Good luck. Don’t let the inevitable bad days get you down, just keep moving!

In this area we have a multi discipline Community Rehab Service. They were a life saver for me. So much useful stuff with just one point of contact. Brilliant. Can't thank them enough.