Hi I found out on Monday I have Diffuse large B-cell lymphoma, I'm still in shock and not all sure how or where to start with everything and what to sort out first, I have been told so much information over the past few days that I still think my head is slowly processing it. Feeling so overwhelmed at the moment.
Hi and warm welcome to the Macmillan Online Community although sorry that you had to find us and especially sorry to hear about your Lymphoma diagnosis.
I am Mike Thehighlander and I help out around our Lymphoma groups. I was diagnosed way back in 1999 with a rare, incurable Low Grade skin Non Hodgkin’s Lymphoma Stage 4 so I understand this journey rather well.
First be encouraged, Lymphomas like DLBCL are very treatable with great results.
Could I recommend that you join our dedicated Diffuse Large B-Cell Lymphoma group. This is a safe place to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support.
If you'd like to connect in with a group click on the Green (Bold) link(s) I have created above. Once the group page opens click on the black banner that says [click to join] at the bottom, or the [Join] button under "Group tools."
You can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using) and you are ready to go. You could copy and paste the text from this post into your new post.
I will keep an eye open for you and will endeavour to help you understand your diagnosis and answer your questions.
