Dad

Former Member
Former Member
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My dad has recently been diagnosed with cancer after a misdiagnosis, back in March he had a lump apear behind the knee it was causing him alot if pain so he took a trio to a&e where he was told he had a cyst that would go away on its own, sadly this wasn't the case and his leg got worse pretty quick and he could no longer walk so he called for an ambulance and back to hospital and checks were done and he was told he has a tumor ( sarcoma ) in the knee was sent home again after 3 weeks during this time a referral was made which took another 3 weeks finally he is picked up and taken to Stanmore hospital and he is told his cancer has spread and nothing can be done and that he actually has months to live if that!!  The reason for my post is because I don't no what to do an I feel like I am going out of my mind this can't be happening it can't be real i can't accept that nothing can be done I want my dad to get better I don't want him to go I can't stop crying i try but I can't and I feel alone i have no one who understands i need someone who understands i don't no if it will help i just need something to feel less alone right now my poor dad he never thought it would be this and now he is bed bound just waiting for that dreaded day, I want to be with him cos I don't want him alone but its so painful to watch what is happening to him, he says he isn't scared but I'm sure he is an I hate that, my mum also has cancer and has just had her first chemo today so she can't visit him now or really be around people as she is vulnerable I'm just lost really and its only going to get worse I've tried to call a doctor I've tried to find groups but this is all I can find , I need help i can't do this I don't no how.

  • Hi  and welcome to the Online Community although I am sorry to hear about both your dad and mum’s diagnosis.

    A cancer diagnosis like this in the family can be such a stressful and challenging time but I do hope you will find the community a safe place to get support and ask your questions.

    You have already seen that Community is divided into support groups (discussion rooms) and when it comes to the practical and emotional challenges of supporting family you may benefit from posting in ourSupporting someone with incurable cancer group, you may also find our Carers only group helpful as you will connect with others navigating the same challenges. These are safe place to talk to others who are walking the Dane journey, to ask questions and get support.

    If you'd like to connect in with a group click on the Green (Bold) link(s) I have created above. Once the group page opens you can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using) and you are ready to go. You could copy and paste the text from this post into your new post.

    It is an emotional time supporting family so you might find this Macmillan information your feelings when someone has cancer helpful as well as this link getting help with your emotions.

    Macmillan have many support services so do check out the Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. These services provide cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.

    Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and aim to give support to all the family.

    Please do get back to me if you need further help.

    ((hugs))

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • Elz, I am going through the exact same thing as you. My dad was misdiagnosed in April and told the lump on his neck was just fatty tissue. He let months go by, and has now been told it is stage 4 and terminal. The misdiagnosis is absolutely gut wrenching. I am also lost and so so frustrated that the system did not work for him. I will be the first person in my friendship group to lose a parent. 

  • Former Member
    Former Member in reply to MC2

    I'm so sorry this is awful and I wish i could do something to help you and all of us going through this, I don't  know if you would like to talk privately but be warned I'm pretty emotional I may cry but I'm hear maybe we can share our stories and help each other some how. Do let me know.