Hi, I’m Dan, and just joined the community.
last year I had my larynx removed and now have a neck stoma but in May of of this year I was told I now have secondary in liver and lung. I’ve now has a few 3 chemo sessions and I think I’ve escape any awful side effects.!!!My first real question is if anyone out there has a neck stoma for any length of time, how long did you use nebuliser for , ive read that some people stop using completely.
any answers would be appreciated.
thanks
Dan
Hi Dan DanM and welcome to the Online Community although I am sorry to see you joining us.
A cancer journey can be such a stressful and challenging time but when it comes to support there is nothing better than talking with others who are on the exact same cancer and treatment journey.
The Community is divided into support groups (discussion rooms) so can I suggest that you consider joining our supportive Head and neck cancer group. This is a safe place to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support.
If you'd like to connect in with a group click on the Green (Bold) link(s) I have created above. Once the group page opens click on the black banner that says [click to join] at the bottom, or the [Join] button under "Group tools."
You can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using) and you are ready to go. You could copy and paste the text from this post into your new post.
Macmillan have many support services so do check out the Macmillan Support Line open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. These services provide cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
Give me a shout if you need further help.
All the very best.
Got this one - all the best 
