My partner has had Leukemia , lymphoma and now has esophagal cancer for which he is receiving palliative care. I have joined the online community as I am struggling to come to terms with his last diagnosis and hope to gain insight into how to cope by sharing with people in similar situations.
i live in a small tight knit community which have been supportive over the years but with his terminal diagnosis it seems harder to communicate with many , I think that shielding during lockdowns and still having to be very careful also made the situation harder.
Hi Pilota and welcome to the Online Community although I am sorry to hear about your partners diagnosis.
A cancer diagnosis like this in the family can be such a stressful and challenging time but I do hope you will find the community a safe place to get support and ask your questions.
The Community is divided into support groups (discussion rooms) and when it comes to the practical and emotional challenges of supporting someone you may benefit from joining our general Carers only and Supporting someone with incurable cancer groups where you will connect with others navigating the same challenges.
If you'd like to connect in with a group click on the Green (Bold) link(s) I have created above. Once the group page opens click on the black banner that says [click to join] at the bottom, or the [Join] button under "Group tools."
You can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using) and you are ready to go. You could copy and paste the text from this post into your new post.
Macmillan have many support services so do check out the Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. These services provide cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
We also have our Ask an Expert section but do allow a few working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing supporting all the family.
Give me a shout if you need further help.
All the very best.
Hi, yes The Beatson is truly amazing and saved my life. I have talked with a number of folks over the years who found themselves in the position you are in and I tend not to direct folks to our Leukaemia or lymphoma groups…… more to protect group members especially folks staring out on their journey.
The support you now need tends not to be available in the main cancer groups but the groups I have suggested are good for connecting with others who are navigating a totally different type of journey.
Wishing you all the very best ((hugs))
