So back on the 7th July after a 2 week wait to speak to a gp they arranged to do blood tests to see if I was starting the menopause ( I'm 47 single mum) The very next day I was phoned at work to say it wasn't menopause but my Liver tests were through the roof. I was told they'd book an ultrasound and general exam to see what was going on. Within 5 minutes the gp phoned back and said she'd also give me a 2 week cancer referral as she wanted to get the process in motion as quickly as possible.
On the 29th July the consultant phoned to say to save time he'd book me straight in for a ct scan.
The gp exam showed an enlarged liver so I went ahead with the ultrasound on the 1st August 3 weeks after the initial call, it was pretty scary on my own but I got through it and she seemed to be focusing on the same place in the middle of my abdomen under the ribs.
An hour after I got home another gp phoned to say they needed to see me straight away. She said the ultrasound had shown masses on either my liver or spleen or both and to prepare to be told I had cancer. She even asked if I had a will.
She said the referral to oncology was on the system for a ct scan and just to wait and hear from them.
Eventually I had the ct scan on the 8th August after phoning and chasing it up, it was over quickly and the radiologist said he'd get the results sent to the consultant that day and it should only be a couple of days until I heard from him.
I waited 4 days and decided to phone them on Friday only to be told the scan results hadn't been sent and it could take up to 2 weeks to get them sent through not the "couple of days" I was told.
I explained how much turmoil I was in as it had been over 5 weeks since my initial referral and asked why it was taking so long. She checked the records and apparently the consultant had asked for further info from my gp and this wasn't sent until the 26th July!
I am beyond scared and recognise I am now in a deep depression, my symptoms have got worse and I can barely eat as it causes pain and although I know it's hot I am literally sweating 24/7.
Luckily I work in a school so am off at the moment but this is giving me far too much free time to worry about the diagnosis, my Nan aged 69 and my Dad 64 both died of Liver cancer and I am terrified I'm going to be next, my youngest son is only 9 years old.
Sorry for the long post, just wanted to know really if this was usual to take so long to get a diagnosis.
Hi JanetH and I see it’s your first post so welcome to the Community.
Talking with others who are navi the r SCT same cancer journey can help a lot so can I recommend you consider joining our very supportive Lung Cancer group.
This is a safe place to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support.
If you'd like to connect in with a group click on the Green (Bold) link I have created above. Once the group page opens click on the black banner that says [click to join] at the bottom, or the [Join] button under "Group tools."
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