Hi, I’m wondering if anyone on here has been diagnosed with Oesophageal cancer. My husband was diagnosed last year and now has days to live, I’m finding it hard to see him in so much pain and not being able to breathe as the cancer has spread to his lymph nodes and lungs. No one understands that I’m trying to be strong but inside I’m heartbroken. Obviously people see my husband as the bearer of this dreadful disease but no one gets how I’m feeling and it’s hard to have support for myself and talk to people.
Hi DeeDee12345 and welcome to the Online Community although I am sorry to hear about your husbands diagnosis and prognosis.
A cancer diagnosis like this in the family can be such a stressful and challenging time but I do hope you will find the community a safe place to get support and ask your questions.
The Community is divided into support groups (discussion rooms) and when it comes to the practical and emotional challenges of supporting family you may also benefit from joining our Gullet (oesophagus) cancer, Carers only and Supporting someone with incurable cancer groups where you will connect with others navigating the same challenges.
If you'd like to connect in with a group click on the Green (Bold) link(s) I have created above. Once the group page opens click on the black banner that says [click to join] at the bottom, or the [Join] button under "Group tools."
You can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using) and you are ready to go. You could copy and paste the text from this post into your new post.
Macmillan have many support services so do check out the Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. These services provide cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
We also have our Ask an Expert section but do allow a few working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing supporting all the family.
Give me a shout if you need further help.
All the very best.
Hi DeeDee
(((((Hugs)))
Sending Strength to you, and your husband during this terrible time.
There is support in the forums suggested by Mike, and via Macmillan, sadly many of the people in those forums have experiences similar to your own. Do reach out there.
Lowe'
