Hi,
New here, even nervous as I type.
bit of background…….. back in feb I had back ache, I suspected kidney infection, doctor suspected kidney stones and sent me for a scan. March 15th doctor rang and asked me to pop in, will never forget that day, I was told there were no stones but they had found a tumour. I was referred straight through to the hospital for further scans which also revealed enlarged lymph glands around the kidney area and a large operation was to be scheduled. To cut a long story short I went in on the 23rd May, 11 weeks ago today for removal of my kidney and lymph node dissection.
i worked full time right up to the operation date which helped me put things to the back of my mind (my way of dealing with things) I had the operation so I’m my head it’s gone, it’s over. consultant rang to say the results were back and the kidney tumour was cancer and some of the lymph glands taken were also affected, hearing that C word again has knocked me six to be honest. I have had to have another CT Scan (Saturday) which will be sent through to oncology for them to decide if any further treatment is required. Thing is it’s not over and it won’t go away, and it won’t be for a long time, yes it’s good that they will scan me and keep and eye on me and I understand that, but how do I deal with it every time? It makes me feel physically sick and frightened. Every slight ache and pain and in my head it’s Cancer again, how do I live with that? I’m 43 with 3 children and want to be able to carry on for their sakes.
thanks for reading and listening xx
Hi Cooper78 and welcome to the Online Community although I am sorry to see you joining us and to hear about your diagnoses and concerns.
A cancer journey can be such a stressful and challenging time but when it comes to support there is nothing better than talking with others who are on the exact same cancer and treatment journey.
The Community has various support groups (discussion rooms) and I see you have joined our Kidney cancer group. This is a safe place to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support.
If you'd like to connect in with a group click on the Green (Bold) link(s) I have created above. Once the group page opens you can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using) and you are ready to go. You could copy and paste the text from this post into your new post.
Macmillan have many support services so do check out the Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. These services provide cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Give me a shout if you need further help.
Best regards.
