Hi I don't know if I can post on here or not but I'm pretty scared right now and have very little in the way of a support network so having anyone listen while I offload will be a start.
So about 2 months ago, during routine blood tests done for my diabetes screening my gp found that my wbc and platelet counts were unexplainably very high, I hadn't lost weight, didn't have signs of an infection and wasn't feeling unwell. He referred me to Haematology, who did further blood tests and arranged for a abdominal and pelvic ultrasound and a trans-vaginal ultrasound. My bloods had more or less gone back to within ok range, but the trans-vaginal ultrasound showed a cyst on my left ovary so I was referred to a gynecologist.
After meeting the Gynecologist yesterday, she reviewed my scan and took a detailed history from me and she explained the scan results more clearly saying the cyst on my ovary was 6cm, didn't have any blood flow, but that the edges were jagged and appeared rough and also pointed out that the lining of my womb was abnormally thickened and what appeared to be a 3cm polyp was present. She also pointed out that one of the tests from haematology was the brca gene test that I had tested positive on. She said she wanted an CT scan done and also for me to have a procedure called a Hysteroscopy where they will remove the polyp from my womb and take a sample from the lining for testing. I was also sent for more blood tests, this time something called a CA125 and a CEA test.
Today I have received a phone call for the CT scan appointment which is set for Tues 9th and was informed it would be a chest, abdomen and pelvic scan and I was informed the hysteroscopy will take place the following Monday 15th. Then a multi-discipline team meeting will take place once all the results come back to discuss what happens next.
I'm terrified to say the least at the possibilities of what this all could mean, I'm a single mum to two autistic young adults whom both rely quite heavily on me and my support network is pretty much limited to one friend who I see 1-2 times a week. I've very isolated where I live with no real supportive family around me and as much as I'm scared for what this means for me, I'm also terrified on how should this be a bad outcome, how I will manage treatments as well as being a carer and meeting the needs of my kids. Overall I'm just feeling really really alone right now and just wanted to get everything out.
Hi Samkay79 and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I'm sorry to read about all the tests you're currently going through and waiting for answers can be a very difficult time.
As the online community is divided up into different support groups I'm going to recommend that you join the ovarian cancer and also the womb cancer groups. This isn't because I think you have either of these types of cancer but simply because you'll then be able to connect directly with others who will understand what you're going through.
To join just click on the links I've created and then join and start a new post in the same way as you did here. You can also join in with existing conversations by clicking on 'reply'.
If you have any difficulty navigating the community just drop me a reply and I'll be pleased to help
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
