Looking to connect with anyone with the same diagnosis? I had a radical hysterectomy in February this year and the pathology diagnosed uterine leiomyosarcoma. My lovely surgeon had to cut, what he thought was a fybroid to get it out. The first CT scan showed a nodule on the lung, the second three nodules with the first one growing. Last scan I have number 4. Very common in uLMS for mets to start in the lungs. I have found a good support group for LMS on Facebook but it’s primarily US contents. Keen to meet up with uLMS warriors in the UK. I’m private under Robin Jones at the Royal Marsden. Also interested in counselling and understanding, what happens when my company private health care runs out. My initial experience in Watford just to get a simple ultrasound scan, which never happened despite ending up in A&E twice, has left me very scared of the nhs.
