Looking to connect with anyone with the same diagnosis? I had a radical hysterectomy in February this year and the pathology diagnosed uterine leiomyosarcoma. My lovely surgeon had to cut, what he thought was a fybroid to get it out. The first CT scan showed a nodule on the lung, the second three nodules with the first one growing. Last scan I have number 4. Very common in uLMS for mets to start in the lungs. I have found a good support group for LMS on Facebook but it’s primarily US contents. Keen to meet up with uLMS warriors in the UK. I’m private under Robin Jones at the Royal Marsden. Also interested in counselling and understanding, what happens when my company private health care runs out. My initial experience in Watford just to get a simple ultrasound scan, which never happened despite ending up in A&E twice, has left me very scared of the nhs.
Maybe think of it as length, width, height? The uterus is a structure made up of muscles, but also layers. It by its nature can expand to hold a baby and contract to expel it. It can also be bigger due to the presence of fibroids. It itself the womb as a structure has a size and thickness-height, width, length. it has a “thickness” because it is made up of muscle.
The endometrium is the lining inside, which is measured and sampled for example in a biopsy. Typically it would be measured in millimetres, not centimetres. The womb as an entity in itself itself is the measurements you will be reading from the report as that’s what it says, regardless of whether this is from an ultrasound or from the womb itself after removal. It is definitely not a measurement of the endometrium (lining).
I’m not sure if this is a clearer explanation?
Sarah xx
I understand it can be difficult, and perhaps I’m not able to explain it in an understandable way though I do understand it myself.
As your wife doesn’t have a cancer diagnosis at the moment, it’s perhaps better to concentrate on the information you do have, rather than try and make assumptions and guesses without a diagnosis. The consultant said 50% would have cancer identified from pathology, which would mean 50% would not, and the percentage diagnosed with uLMS would be a tiny proportion of any uterine cancer diagnosis, as it is extremely rare. But the pathology will identify if there is cancer, and from there which type it is. The only certainty at this point is that the womb lining will not be 8.9cm.
Sarah xx
