As a family, we have been given the devastating news that our dad has been diagnosed with stage 4 Oesophageal Cancer. Surgery is not an option. Immunotherapy is not an option and we've been told the prognosis is months. This is a massive heartbreak for our family as our dad is currently fit and well and you'd have never guessed he has a deadly tumour growing inside him. Unfortunately the care he has been given so far is appalling. His first chemotherapy session has been constantly delayed due to some test results not being back. These tests were delayed due to a careless human error of someone not ticking the correct box and sending them off in time. No one has took responsibility of this and we've had to chase them up for an update. The only time we hear from them, is when ring them. When you tell someone that they have months to live, how can you allow 6 weeks to pass without treatment?! Me, my mum and sister all work for the hospital he's at so it's a kick in teeth. We've had to go down the PALS/complaints route. A formal investigation is currently happening and we've finally got a date this Friday for his first chemo session. However, all the chemo in the world wont change the prognosis and i cant bear the thought of him not being here this time next year. My dad is the eternal optimist but behind closed doors he's been breaking down over how he wont see his grandkids grow up and how scared he is. I feel numb with emotion if that's even possible. How are people expected to carry on with life whilst coping with this?
Hi Palladium and a very warm welcome to the online community which i hope you'll find is both an informative and supportive place to be.
I'm really sorry to read about your dad's diagnosis and the problems you've encountered so far and I know what a difficult time having a cancer diagnosis is.
As the online community is divided up into different support groups I'm going to recommend that you join the oesophageal cancer group, where you can ask questions and share experiences with others with this type of cancer, and also the supporting someone with incurable cancer group which is a safe and supportive place to discuss your worries and emotions with others supporting a loved one with an incurable diagnosis.
To join these groups click on the links I've created and then join and start a new post in the same way as you did here. You can also join in with existing conversations by clicking on 'reply'.
It would be great if you could pop something about about your dad's diagnosis and treatment so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
If you have any difficulty navigating the community just drop me a reply and I'll be pleased to help
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
Hi jamjazzmine and welcome to the community.
Could you perhaps tell us what brings you here?
"Never regret a day in your life, good days give you happiness, bad days give you experience"
Hi Franniefanakapan and welcome to the online community, although I'm sorry you've had to join us.
I can see that you've joined the oesophageal cancer group, which is a great place to ask questions and share experiences about that type of cancer, and also the supporting someone with incurable cancer where you'll be able to ask about others experiences with palliative care.
When you feel ready to post in those groups I'm sure you'll find they're informative and supportive place to be.
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
That's great
((hugs))
"Never regret a day in your life, good days give you happiness, bad days give you experience"
Hi jamjazzmine
Not being able to eat sometimes must be horrible.
As the online community is divided up into different support groups, it would be best to post this question in the relevant group. You could either tell me what type of cancer you have, and I could then give you a direct link, or you could look through this list.
It would be great if you could pop something about about your diagnosis and treatment so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
If you have any difficulty navigating the community just drop me a reply and I'll be pleased to help
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
