Hi everyone,
My story began almost 2 weeks ago on a Sunday after dinner where my Wife had a seizure for the first time ever, it was the most horrific thing I have ever seen, experienced and will haunt me for the rest of my life. I called an ambulance and it all went from there, we found out that she has a brain tumour that is high likely to be malignant so she has had all the tests and an apt with a Neuro Surgeon and an operation is the first step to find out more definitive information about the tumour.
It has been a whirlwind of emotions and just so crazy how your life can be turned upside down so quickly, you never think that it will be you or those you love but here we are.
My wife has been so brave and laid back throughout this whole process, she has barely shed a single tear however she has displayed like an emotional stop for around a week but is now getting back to her usual self which helps me get through this, it was hard seeing her so down and just not emotionally there, broke my heart.
If anyone has any experiences they would like to share with me about looking after a spouse or partner it would be greatly appreciated as I know it will be a hard road to navigate going from Wife to primary carer and back again so any experiences or tips would be amazing.
I look forward to getting to know as many of you as possible and helping each other get through these tough and uncertain times.
My hope and love
XxxxX
Hi and welcome to the Macmillan Online Community although I am so sorry to hear about your wife’s diagnosis. A cancer diagnosis in the family can be such a stressful and challenging time but I do hope you will find the community a safe place to get support and ask your questions.
The Community has various support groups (discussion rooms) so can I recommend that you consider joining our supportive Brain tumours group. This will be a safe place to talk to others who may have a similar diagnosis, treatment experience, to ask questions and talk with others who are supporting family and friends on their treatment pathway.
If you'd like to connect in with a group click on the Green (Bold) link I have created above. Then once the group page opens click on the black banner that says [click to join] at the bottom, or the [Join] button under "Group tools."
You can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using) and you are ready to go. You could copy and paste the text from this post into your new post.
When it comes to the practical and emotional challenges of supporting someone you may benefit from joining our general Family and friends and Carers only groups where you will connect with others in the same position.
Macmillan have many support platforms so do check out the Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 or via Webchat and Email too.
These services provide cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear. We also have our Ask an Expert section but do allow a few working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and provide support for all the family.
Give me a shout if you need further help.
Best regards.
Hi and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I'm really sorry to read that your wife has been recently diagnosed with a brain tumour and I know what a hard time this will be for you both.
As the online community is divided up into different support groups I'm going to recommend that you join the carers only group which is a safe and supportive place to discuss your worries and to find out how others are coping. Once you know more about the type of brain tumour that your wife has you might want to join one of the specific groups for that where you can ask questions around treatment.
Clicking on the link I've created will take you to the group where you can then join and post in the same way as you did here. You can also join in with existing conversations by clicking on 'reply'.
When you know more about your wife's diagnosis and treatment plan it would be great if you could pop the details into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
If you have any difficulty navigating the community just drop me a reply and I'll be pleased to help
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
