Hi, my name is Liz but if you met my mum she’d say we didn’t christen you Liz it’s Elizabeth….LOL! This journey (only way to describe it) started back on 25th February 2022 when my mum told me she’d been bleeding, I did a search on google (I know you should never google, but It seemed to help me prepare), and told her I’d get her an appointment with a GP on the Monday. Monday came and after an hour waiting to get through, I explained my mums symptoms and was able to get her an appointment. The doctor felt a lump and I said if I couldn’t get a GP appointment I’d be taking her to a&e, doctor said ‘if you can take her to a&e now then do it’. Took her to a&e and advised to go to the woman's department where she was admitted. To cut a long story short, we still don’t have a diagnosis, and therefore no treatment. The care team spoke to me yesterday to say they want to move my mum into a hospice and when asked how long they said you’re looking at weeks! I have so many questions, surely this can’t be normal? NHS England say 2 weeks for a referral and 4 weeks for a diagnosis/treatment. This was not met why? I’m just having a really bad time struggling with this? Has anyone else gone through something similar? Any advice? I’ve prepared a timeline and got a case with PALS, these are the questions my mum also has, she said to me today, when she was at home she could go up and down stairs she now has trouble walking the length of the ward….
Hi Liz and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I'm really sorry to read that your mum's team have not been able to give a diagnosis but they have said that she only has a limited amount of time. This must be an incredibly hard time for you all.
I can see that you've already joined and posted in the ovarian cancer group which is a great place to ask questions and share experiences with others who have that type of cancer.
I hope you don't mind me suggesting that you also join the supporting someone with incurable cancer group as it's a safe and supportive place to discuss your emotions, as well as practical issues around hospice care. You might also find others who have had a similar experience to you and your mum.
If you have any difficulty navigating the community just drop me a reply and I'll be pleased to help
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
