Having trouble accepting end of life diagnosis

FormerMember
FormerMember
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I’m having difficultly accepting my Mum’s diagnosis.
She has terminal lung cancer which was diagnosed in January and been on  a course of chemo and more recently immunotherapy. It looked like the cancer was in remission, then we got the dreadful news that it had come back more aggressively and is now in multiple places in her brain and in her liver. 
She has been so brave, and has decided not to have any more treatment. We have at most 3 months with her. 

The reality has finally hit me that she is going to die. I thought we had time.  She is such a beautiful and kind person, who doesn’t deserve this ending. My mum has been my everything. To watch someone you love so much suffer is heartbreaking.
My dad passed away a few years ago, so I know I need to help my mum with her end of life plans. But I can’t stop crying and feel absolutely terrified of losing her and totally unravelling .
Help

  • Hi  and welcome to the Macmillan Online Community although I am so sorry to hear about your mum’s  diagnosis. A cancer diagnosis like this in the family can be such a stressful and challenging time but I do hope you will find the community a safe place to get support and ask your questions.

    The Community has various support groups (discussion rooms) and when it comes to the practical and emotional challenges of supporting someone you may benefit from joining our general Carers only and Supporting someone with incurable cancer groups. These will be safe places to talk to others who may be dealing with the same challenges, to ask questions and talk with others who are supporting family and friends.

    If you'd like to connect in with a group click on the Green (Bold) link I have created above. Then once the group page opens click on the black banner that says [click to join] at the bottom, or the [Join] button under "Group tools."

    You can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using) and you are ready to go. You could copy and paste the text from this post into your new post.

    Macmillan have many support platforms so do check out the Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 or via Webchat and Email too.

    These services provide cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear. We also have our Ask an Expert section but do allow a few working days for a reply.

    Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and provide support for all the family.

    Give me a shout if you need further help.

    Best regards.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • Hi, I’m new to this but I want to share my experience of what happened with my mum.

    We didn’t know my mum had cancer until we were told she had 6-8 weeks left. 
    whilst mum was able we planned a big family day out to the local zoo. Spent time with her each day and carried out her wishes. She planned her own funeral and made cards etc for grandchildren etc. 

    All you can do is be there for your mum, your mum will know how your feeling but I expect she may save her tears for when she’s alone. 
    It may not feel like it but you can and will get through it and your mum would be so proud 

  • Hi, we have just found out my mum have liver cancer that is terminal. I'm fleeting between trying to be positive and then angry, sad. Lost my dad couple years ago my brother a year ago and now this with mum. She's such a kind, loving woman and she has been trying to be strong and positive but I see it in her eyes. She dotes on my son and he adores her. I'm trying to be positive but then thinking I need to ask this ask that  how will I afford her funeral. My head is bursting

  • Hi  and welcome to the Mac Community but so sorry to hear your news.

    Do check out the groups I have highlighted in my post above. As for the financial challenges do call the Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 or via Webchat and Email too. These services provide cancer information, practical information, emotional support, benefits/financial guidance with regards funeral costs or just a listening ear. 

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • Thankyou, I will have a look.