Hello everyone
I am very grateful to find this support group. Thank you so much, Macmillan, for providing a warm welcome and for offering all that you do.
My situation is that my emotional rollercoaster ride as a carer is complicated by my husband having what I strongly believe to be autistic and ADHD characteristics as well as a large, benign brain tumour. Yesterday, he received a diagnosis of early myelofibrosis. I am quite exhausted just now and not able to pinpoint specific difficulties that I am having but just want to introduce myself and thank you for reading.
Hi Apricots and welcome to the Macmillan Online Community although I am so sorry to hear about husbands diagnosis. A cancer diagnosis in the family can be such a stressful and challenging time but I do hope you will find the community a safe place to get support and ask your questions.
The Community has various support groups (discussion rooms) so can I recommend that you consider joining our supportive Brain tumours and MDS/MPN/ET/PV/myelofibrosis (MF) groups. These are safe places to talk to others who may have a similar diagnosis, treatment experience, to ask questions and talk with others who are supporting family and friends on their treatment pathway.
If you'd like to connect in with a group click on the Green (Bold) link I have created above. Then once the group page opens click on the black banner that says [click to join] at the bottom, or the [Join] button under "Group tools."
You can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using) and you are ready to go. You could copy and paste the text from this post into your new post.
When it comes to the practical and emotional challenges of supporting someone you may benefit from joining our general Family and friends group and I see you have joined our Carers only group. These are good places to connect with others in the same position.
Macmillan have many support platforms so do check out the Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 or via Webchat and Email too.
These services provide cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear. We also have our Ask an Expert section but do allow a few working days for a reply.
To find information covering diagnosis, treatments and pages covering most types of cancers check our Online Information and Support Section.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and provide support for all the family.
Give me a shout if you need further help.
Best regards.
