Hello I’m new to the group my husband was diagnosed with multiple myeloma 2 weeks ago and spent a week on the renal unit before he could start his treatment as it has also damaged his kidneys and has to have dialysis 3 times a week. We seem to be at appointments every day and he is exhausted. PET scan today to see how the disease is progressing and he will be admitted to the cancer centre this afternoon as he has fluid on his lungs and chest infection. The chest line for dialysis keeps leaking which I think is due to the lack of platelets in his blood. He is so anxious and is struggling to breathe when walking and, being self employed brings a whole lot of other worries of how we will pay the bills.
Hi and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I'm sorry to read that your husband has recently been diagnosed with multiple myeloma and I know what a difficult time this will be for you both.
When you've had a cancer diagnosis the last thing you want to worry about are your finances so you might like to take a look at this information from Macmillan on self-employment and cancer.
I can see that you've already found and joined the carers only group which you'll find is a safe and supportive place to discuss your worries and emotions with others who have someone dealing with cancer.
You might also like to join the myeloma group which will give you the chance to ask questions and share experiences with others who have this type of cancer.
If this is something that you'd like to do just click on the link I've created and then join and post in the same way as you did here. You can also join in with existing conversations by clicking on 'reply'.
When you feel up to it it would be good if you could pop something about your husband's diagnosis and treatment so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
If you have any difficulty navigating the community just drop me a reply and I'll be pleased to help
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
