Hello there.
I am new to the group so just thought I'd share my story so far.
Two weeks ago I was told I had a very large brain tumour growing in the insular part of the frontal lobe. I have my pre op next week then hopefully surgery the week later. Apparently it's been growing in there slowly for more than 5 years. Although the initial shock hit me hard it has slowly started to sink in. I am now just petrified about the surgery.
I know I need to take it one step at a time and get the surgery over before discussion around plan, treatment after op etc it's just so hard putting on a brave face especially as I have a 10 year old who at this point doesn't know a thing.
thanks for reading
Hi and a warm welcome to the Online Community although I am so sorry to hear about your diagnosis. A cancer diagnosis can be so stressful and challenging but I do hope you find the community a safe place to ask your questions and when it comes to support there is nothing better than talking with others who are on the same journey.
The Community has dedicated cancer specific support groups so can I recommend that you consider joining our supportive Brain tumours group. This is a safe place to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support.
If you'd like to connect in with a group click on the Green (Bold) link I have created above. Then once the group page opens click on the black banner that says [click to join] at the bottom, or the [Join] button under "Group tools."
You can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using) and you are ready to go.
You could copy and paste the text from this post into your new post and as always you can reply to existing ‘Discussions’ by click [reply].
The Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 or via Webchat and Email too. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear and our Cancer Nurse Team in our Ask an Expert section may be helpful but do allow a few working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and provide support for all the family.
Always around if you need further help in navigating the community.
All the very best.
No problem - wishing you all the best on your journey l.
