I’m new here and tbh a bit lost. After much investigation a NET was diagnosed on the tip of my appendix. I had my appendix removed on 1/3/22 . The tumour was bigger than expected. After it was analysed etc, it was confirmed that it had been too close to my bowel so on 24/5/22 I had a Right Hemicolectomy. I was lucky as it was done by keyhole and I didn’t have to have a stoma. Again this has gone off to be analysed and I’m waiting on results. I’m now recovering at home but I think I blocked out what a big operation i was having and why I was having it. I’m feeling a bit low and tearful at the mo. I just didn’t know who to talk to that’s why I have joined the community.
Hi and a warm welcome to the Online Community although I am so sorry to hear about your ongoing diagnosis.
A medical diagnosis can be so stressful and challenging but I do hope you find the community a safe place to ask your questions and when it comes to support there is nothing better than talking with others who are on the same journey.
The Community has dedicated cancer specific support groups so can I recommend that you consider joining our supportive Bowel (colon and rectum) cancer group. This is a safe place to talk to others who may have a similar diagnosis experience, to ask questions and get support.
If you'd like to connect in with a group click on the Green (Bold) link I have created above. Then once the group page opens click on the black banner that says [click to join] at the bottom, or the [Join] button under "Group tools."
You can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using) and you are ready to go.
You could copy and paste the text from this post into your new post and as always you can reply to existing ‘Discussions’ by click [reply].
The Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 or via Webchat and Email too. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear and our Cancer Nurse Team in our Ask an Expert section may be helpful but do allow a few working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and provide support for all the family.
Always around if you need further help in navigating the community.
All the very best.
Thank you so much for your understanding and info. I am going to join the bowel support group. Stay positive, strong and safe x
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