Coping with a fast diagnosis

Hi Bequest and a warm welcome to the Online Community although I am so sorry to hear about your partners AML diagnosis.

I understand this journey well as I have been living and being treated for my rare type of blood cancer for over 23 years…. take this as an encouragement as on the whole these blood cancer are very treatable.

A fast diagnosis is not that unusual but do see this being a positive as often folks are not diagnosed quickly and this results in the AML being harder to treat.

A cancer diagnosis like this in the family can be so stressful and challenging but I do hope you find the community a safe place to get support and ask your questions.

The New to Community area is our reception desk where we can signpost you to our various cancer support groups and other services so can I recommend that you consider joining our supportive Acute myeloid  leukaemia group. This will be a safe place to talk to others who may have a similar diagnosis, treatment experience, to ask questions and talk with others who are supporting family and friends on their journey.

If you'd like to connect in with a group click on the Green (Bold) link I have created above. Then once the group page opens click on the black banner that says [click to join] at the bottom, or the [Join] button under "Group tools."

You can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using) and you are ready to go.

You could copy and paste the text from this post into your new post and as always you can reply to existing ‘Discussions’ by click [reply].

I will keep an eye open for you as I do help out across our various blood cancer groups ((hugs))

Thank you so much Mike for taking the time to reply,

hopefully we are getting more results today so I will know more about the exact AML diagnosis- I think I'll go say hi in the group you've suggested and go from there!

Hi Bequest I can see Mike has given you the link to the AML forum. I was suddenly diagnosed with ALL in September 2012 and had to start treatment immediately as well. For me it was a case of denial for a while thinking they must be wrong and that they would suddenly appear and say that they had made a mistake and it was a virus of some sort. I was knocked into remission within about 5 weeks so no sooner had I started to come to terms with it than they were telling me that I was in remission and I was celebrating with a pint! The pint tasted all wrong because of the chemo but cest la vie.  

I went on to have more treatment and a stem cell transplant which worked for me which was 9 years ago today. As Mike said an early diagnosis always helps.

Thanks so much for getting back to me I know you probably feel like you're repeating yourselves a lot, but this really means a lot to me right now, hearing people's experiences definitely helps me personally rather than technical jargon!