Oesophageal Cancer

Hi SLC and a warm welcome to the Online Community although I am so sorry to hear about your husbands diagnosis. A cancer diagnosis like this in the family can be so stressful and challenging but I do hope you find the community a safe place to get support and ask your questions.

The New to Community area is our reception desk where we can signpost you to our various cancer support groups and other services and as you have joined our Gullet (oesophagus) cancer group you find it a safe place to talk to others who may have a similar diagnosis, treatment experience, to ask questions and talk with others who are supporting family and friends on their journey.

If you'd like to connect in with a group click on the Green (Bold) link I have created above. Then once the group page opens you can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using) and you are ready to go.

You could copy and paste the text from this post into your new post and as always you can reply to existing ‘Discussions’ by click [reply].

When it comes to the practical and emotional challenges of supporting someone you may benefit from joining our general Carers only group where you will connect with others supporting family and friends

The Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 or via Webchat and Email too. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear and our Cancer Nurse Team in our Ask an Expert section may be helpful but do allow a few working days for a reply.

Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and provide support for all the family.

Always around if you need further help in navigating the community.

Wishing you all the very best

Hi, i have just joined this forum. I know exactly how you feel. My husband was diagnosed with it last september.  His tumour was 8cm and they thought it has burst his oesophageal wall. After many weeks of chemotherapy and radiotherapy we had the all clear last week.

i am telling you this because you have a long road ahead of you,but the christie hospital were absolutely fantastic. I cannot praise them enough.

 I live in the manchester area. I have spent many hours sat in my car waiting for him to have treatment. This was due to covid they would not allow partners in. 
i could tell you a more but i am sure your being overwhelmed at the moment.

when i sat at MRI waiting for to have the scans i met a lovely women and we chatted straight away about our circumstances. We have kept in touch every week we call and cry and laugh and just generally help each other.

really sorry to hear about your father, it must be really hard for you coping with all this. I hope you have a good support network around you.

i am hear if you need to ask any questions , i only wish somebody who was going through the same thing was there for me.

Take care of yourself as well, that was one of the best things somebody said to me.

Thank you for your reply, it’s been tough but good to know there are others like yourself that have had a similar situation. I will definitely be in touch. Thanks again.