At the start of my journey

FormerMember
FormerMember
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Hi 

4 weeks ago I found out that I have breast cancer .

it has been a rollercoaster of events, scans, biopsies, doctors appts . It has been the craziest whirlwind and suddenly everything has changed massively.

i started chemo a week ago and I have been shocked by how Bad I have felt . 

it’s crazy how I felt fine before and yet now the medicine is making me feel bad.

i knew there would be side effects but because everyone reacts so differently I hoped I won’t feel too bad 

the tiredness, sickness, headaches , aching muscles , feeling weak , dry my mouth and metallic taste and the fact that I feel like I’m swaying all the time Joy

Anyone else’s been shocked by their reaction to chemo ?

I am starting to feel better which I’m feeling so happy about but knowing I have to start it again next week is not something I’m looking forward to .

Can anyone else share their first experiences of chemo ?

thank you

  • Hi  and a warm welcome to the Online Community although I am so sorry to hear about your diagnosis.

    A cancer diagnosis can be so stressful and challenging but I do hope you find the community a safe place to get support and ask your questions.

    The New to Community is like our reception desk where we can signpost you to our various cancer support groups and other services so can I recommend that you consider joining our supportive Breast cancer group. This will be a safe place to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support.

    If you'd like to connect in with a group click on the Green (Bold) link I have created above. Then once the group page opens click on the black banner that says [click to join] at the bottom, or the [Join] button under "Group tools."

    You can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using) and you are ready to go.

    You could copy and paste the text from this post into your new post and as always you can reply to existing ‘Discussions’ by click [reply].

    The Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 or via Webchat and Email too. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear and our Cancer Nurse Team in our Ask an Expert section helpful but do allow a few working days for a reply.

    To find information covering diagnosis, treatments and pages covering most types of cancers check our Online Information and Support Section

    Talking to people face to face when on a cancer journey can be very helpful so do check to see if you have any Local Macmillan Support in your area.

    Do also check out for a local Maggie's Centre in your area as these folks are amazing and provide support for all the family.

    Always around if you need further help in navigating the community.

    All the very best.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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