Hi I'm kizzy, I was referred by my Doctor to go to
ENT Withen 2weeks he said his referring me to mouth/oral within this time I've had a MRI scan with contrast ?? And my appointment has been bought forward to the 9 may with ENT and the 17th Ma
with an oral surgery serviice. I haven't been told what for or what to expect and with only 2days to go I'm getting a bit worried. Does anyone have any experience of advice. Thanks in advance
Hi and a warm welcome to the Online Community although I am so sorry to hear about your ongoing diagnosis process. This is often a very stressful time and based on my 23 years with my condition changes in a appointments often happens due to pulling forward appointments due to cancellation and more capacity but the important thing to get is you are going to see someone quicker and this can only be a positive move.
The New to Community is like our reception desk where we can signpost you to our various cancer support groups and other services….. and the best people to talk with about what to expect are folks who have actually walked the same journey so can I recommend that you consider joining our supportive Head and neck cancer group. This will be a safe place to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support.
If you'd like to connect in with a group click on the Green (Bold) link I have created above. Then once the group page opens click on the black banner that says [click to join] at the bottom, or the [Join] button under "Group tools."
You can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using) and you are ready to go.
You could copy and paste the text from this post into your new post and as always you can reply to existing ‘Discussions’ by click [reply].
The Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 or via Webchat and Email too. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear and our Cancer Nurse Team in our Ask an Expert section helpful but do allow a few working days for a reply.
To find information covering diagnosis, treatments and pages covering most types of cancers check our Online Information and Support Section.
Talking to people face to face when on a cancer journey (patient or family) can be very helpful but during these strange times it’s not that available but do check to see if any Local Macmillan Support in your area has opened up. Do also check out for a local Maggie's Centre in your area as these folks are amazing and provide support for all the family.
Always around if you need further help in navigating the community.
All the very best.
