Hello everyone,
I'm a newbie on here. My husband is a cancer patient, 8 years now. He has B cell follicular lymphoma non Hodgkin. He has been through growling treatment over the years and is/was in clinic remission.
For a while now he has been unwell, tests to be done next week, but macmillan called a week ago saying it’s looking like bowel cancer. Although he has been ill for years macmillan have not been involved.
I’m very worried about him. I have a lot of questions to ask, but as yet not seen anyone to ask. I’d like to know if my husband does have bowel cancer, is he still in clinic remission with the lymphoma cancer? Would it be classed as secondary cancer? What treatment is available? How effective is it? All these questions are going through my mind right now
He says he can feel “it” move around in his stomach, from one position to another. Has anyone else heard of this or experienced it?
Thank you for letting join and thanks to anyone who reads this and can throw any light on my questions
Hi and a warm welcome to the Online Community although I am so sorry to hear about your husband's diagnosis and ongoing issues.
A cancer diagnosis in the family can be so stressful and challenging in many ways but I do hope you find the community a safe place to get support and ask your questions.
The New to Community is like our reception desk where you can be signpost to our various cancer support groups and other services so can I recommend that you consider joining our supportive Bowel (colon and rectum) cancer group. This will be a safe place to talk to others who may have a similar diagnosis, treatment experience, to ask questions, get support and talk with others who are supporting family and friends on their journey.
If you'd like to connect in with a group click on the Green link I have created above. Then once the page opens click on the black banner that says [click to join] at the bottom, or the [Join] button under "Group tools."
You can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using) and you are ready to go.
You could copy and paste the text from this post into your new post and as always you can reply to existing ‘Discussions’ by click [reply].
But most of your questions will have to be put to his clinical team once you have appointments. Having a call with a Macmillan Cancer Nurse Specialist (CNS) is not that unusual, did he NOT have an CSN when being treated for his FL?
I have lived with another type of Low Grade Non Hodgkin's Lymphoma for over 23 years. We do have our Follicular lymphoma where you can talk with others. Having a blood cancer can make you open to develop other cancers but these would not necessarily seen as secondary cancers as blood cancer are very specific and self contained........ could it be that his FL is presenting in his stomach?
The Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 or via Webchat and Email too. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
You may also find our Cancer Nurse Team in our Ask an Expert section helpful but do allow a few working days for a reply.
To find information covering diagnosis, treatments and pages covering most types of cancers check our Online Information and Support Section.
Talking to people face to face when on a cancer journey (patient or family) can be very helpful but during these strange times it’s not that available but do check to see if any Local Macmillan Support in your area has opened up. Do also check out for a local Maggie's Centre in your area as these folks are amazing and provide support for all the family.
Always around if you need further help in navigating the community.
All the very best ((hugs))
Hi Bev, sorry CSN is a typo it should have been CNS Cancer Nurse Specialist 
The availability of Cancer Nurse Specialists is all down to individual hospitals and for the Health Board to fund the places or accept the funding from Macmillan to have a CNS in various departments - there is a lot of differences across the country.
Some hospitals would just give patients a ‘named nurse’ as a contact but again there is regional differences.
I see that you have put a pot up in the Bowel Cancer group and my friend court has been in touch, the group members are best placed as to how this specific type of cancer is investigated. Let’s look for answers soon ((hugs))
