Hi was recently diagnosed with a rare thyroid cancer, Cribriform Morular Variant of Papillary Carcinoma, has anybody heard of it? as I can get very little information about it. Consultant said if that this was curable. I had a lump on my right thyroid 5.5cm had FNA done and result was inconclusive which led to my right thyroid being removed and results came back with CMV of PC. I had to have my left thyroid removed 8 weeks later test on it came back clear. I'm on a high dose of Levothyroxine 125 was told I would lose weight but so far all I've got is an intolerance to heat and extremely tired. I'm waiting to hear if I'm getting the RAI treatment which consultant has said I would probably will. How long after the operation do you get the RAI as I would like to get this done ASAP as my daughter is expecting her first child and is moving in with me? This cancer has links to Colon cancer so I'm being sent for a Colonoscopy and Gastroscopy on Wednesday I think I'm more stressed about it. I've also been to the genetic clinic as there has been quite a few members of the family passed away with different cancers including Bowel cancer. I just feel so stressed at the minute!
Hi Lily60 and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
As the online community is divided up into different support groups I'm going to recommend that you join the thyroid cancer group as this will give you direct contact with others who may have the same type of thyroid cancer.
Clicking on the link I've created will take you to the group where you can join and post in the same way as you did here. You can also join in with existing conversations by clicking on 'reply'.
It would be great if you could pop something about your diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
If you have any difficulty navigating the community just drop me a reply and I'll be pleased to help
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
