Trying to be positive

positivityiskey1981 over 3 years ago

1 reply
21 subscribers
271 views

Hi all.
Long story alert....
My mum was presenting with a stroke early Jan, they scanned her brain and found a lesion and also a lesion on the lung.
They were successful in removing All of the brain tumor and started her on carboplatin and pematrexed. She was sent for a PET scan which showed it has spread to one lymph node in the pelvis and speckles in the lung (nothing left in the brain)
The consultant has now put her on keytruda and carboplatin which she started on Wednesday. No side effects at the moment.
He said without treatment she will have 6 months but if she accepts the treatment then she will have a good few years and her silver lining is that she has good cell receptors.
She is convinced that the treatment won't work for her, I am trying to stay very positive and have seen people in a lot worse positions come through the other side. Am I wrong for being so optimistic?

Hi positivityiskey1981 and welcome to the Online Community although I am so sorry to see you joining us. Sorry to hear about your mum's journey, a cancer diagnosis can be a very stressful and challenging time for all the family but I do hope you find the community a safe place to get support and ask your questions.

The New to Community is like our reception desk where you can be signpost to our various cancer support groups and other services so can I recommend that you consider joining our supportive Brain tumours and Lung, secondary cancer groups. These are safe places to talk to others who may have a similar diagnosis, treatment experience, to ask questions and talk with others who are supporting family and friends on their journey.

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When it comes to the practical and emotional challenges of supporting someone on their cancer journey you may benefit from joining our supportive Family and friends and Carers only groups where you will connect with others supporting family and friends

The Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 or via Webchat and Email too. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear. You may also find our Ask an Expert section helpful but do allow a few working days for a reply.

Talking to people face to face when on a cancer journey (patient or family) can be very helpful but during these strange times it’s not that available but do check to see if any Local Macmillan Support in your area has opened up. Do also check out for a local Maggie's Centre in your area as these folks are amazing and provide support for all the family.

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All the very best ((hugs))

Mike (Thehighlander)

It always seems impossible until its done - Nelson Mandela