I was treated with 5weeks of radium treatment % years ago followed by 3 years of Prostap injections, unfortunately my PSA started to rise and a body scan revealed a deposit on 1 rib and a tiny deposit on my right hip. I then started a course of 4 weeks of Biculutumide with a prostap injection a week in, today I begin a course of Earleda together with 3 monthly prostap injections.PSA Dec. 21st 6.6. Anybody else on this road?
Hi Gardo and welcome to the Online Community although I am so sorry to see you joining us. The cancer journey can be very stressful and challenging but I do hope you find the community a safe place to get support and ask your questions especially with people who are walking the same journey.
The New to Community is like our reception desk where you can be signpost to our various cancer support groups and other services so can I recommend that you consider joining our supportive Prostate cancer group. This will be a safe place to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support.
If you'd like to connect in with a group click on the Green link I have created above. Then once the page opens click on the black banner that says [click to join] at the bottom, or the [Join] button under "Group tools."
You can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using) and you are ready to go.
You could copy and paste the text from this post into your new post and as always you can reply to existing ‘Discussions’ by click [reply].
The Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 or via Webchat and Email too. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear. You may also find our Ask an Expert section helpful but do allow a few working days for a reply.
Talking to people face to face when on a cancer journey (patient or family) can be very helpful but during these strange times it’s not that available but do check to see if any Local Macmillan Support in your area has opened up. Do also check out for a local Maggie's Centre in your area as these folks are amazing.
Always around if you need further help in navigating the community.
All the very best.
