My mum/best friend has cancer of of unknown primary, incurable.

FormerMember
FormerMember
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On Christmas day my mum found 2 lumps on her body, a few weeks later another one appeared. 

A month later she was diagnosed with cancer.

She has cancer of unknown primary, they don't know where her cancer has started, so this is incurable. 

She is my best friend and seems we are living an endless bad dream we cannot wake up from.

I cannot imagine my life without my mum and I am soul destroyed.

She is starting her treatments on the 14th of March, also her cancer is incurable but she is going to get radiotherapy to reduce lumps getting bigger and to reduce pain. 

We are after getting referred to a doctor that deals with this rare cancer.

I am her only daughter, my mum is my life, my bestie.

I am looking for some support, courage through this.

I have contacted my GP and I am on a long list for therapy but in the meantime I would like to have some support, this is soul destroying.

  • Hi  and welcome to the Online Community although I am so sorry to hear about your mum's diagnosis, this must have come as a shock for you all. This is such a stressful and challenging time for all the family but I do hope you find the community a safe place to get support and ask your questions.

    The New to Community area is like our reception desk where we can signpost you on to our various cancer support groups and other services so can I recommend that you consider joining our supportive Unknown primary cancer group. This will be a safe place to talk to others who may have a similar diagnosis, to ask questions and talk with others who are supporting family and friends on their journey.

    If you'd like to connect in with a group click on the Green link I have created above. Then once the page opens click on the black banner that says [click to join] at the bottom, or the [Join] button under "Group tools."

    You can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using) and you are ready to go.

    You could copy and paste the text from this post into your new post and as always you can reply to existing ‘Discussions’ by click [reply].

    When it comes to the practical and emotional challenges of supporting someone on their cancer journey you may benefit from joining our supportive Carers only and Supporting someone with incurable cancer groups where you will connect with others supporting family and friends.

    It is an emotional time supporting family so you might find this Macmillan information your feelings when someone has cancer helpful.

    The Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 or via Webchat and Email too. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear. You may also find our Ask an Expert section helpful but do allow a few working days for a reply.

    Talking to people face to face can be very helpful but during these strange times it’s not that available but do check to see if any Local Macmillan Support in your area has opened up. Do also check out for a local Maggie's Centre in your area as these folks are amazing.

    Always around if you need further help in navigating the community.

    All the very best ((hugs))

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • FormerMember
    FormerMember in reply to Thehighlander

    Thanks a million!

  • It’s a pleasure to help you navigate the community ((hugs))

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge