Hello. I've recently been diagnosed with Non Hodgkin's Lymphoma, which began suddenly on and around my thyroid, affecting my breathing and eating. It's all been a massive learning experience since, and I have now completed my first course of R-CHOP. I think I have subtle side effects rather than urgent ones so far, most notably losing my sense of taste as soon as the Rituximab treatment started! I'm just taking each day as it comes right now, and looking ahead to my next treatment. Happy to discuss anything which might help others or myself to understand more.
Hi bendorain and warm welcome to the Macmillan Online Community although sorry that you had to find us and especially sorry to hear about your Lymphoma diagnosis.
I am Mike Thehighlander and I help out around our Lymphoma groups. I was diagnosed back in 1999 with a rare incurable skin Non Hodgkin’s Lymphoma so have been on this journey rather a long time and know it well.
There are over 60 types and subtypes of Lymphoma so we can’t have a group for every type but these are our main Lymphoma groups below.
General Non Hodgkin's Lymphoma
Have a look at the group names and you'd like to connect in with a group click on the best Green link I have created above. Then once the page opens click on the black banner that says [click to join] at the bottom, or the [Join] button under "Group tools."
You can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using) and you are ready to go.
You could copy and paste the text from this post into your new post and as always you can reply to existing ‘Discussions’ by click [reply].
I will keep an eye open for you but if you are not sure get back to me on this post and I will help you out further.
