I have just been diagnosed this week with right breast lobular carcinoma. MRi next Tuesday. I had been feeling discomfort for a little while & I just thought it was the wires in my bra. I haven't been good at checking my boobs, not that it would have made much difference with this lesion. I noticed a fine wrinkling of the skin when I raised my arms drying myself in early January. The practice nurse didn't think it was anything, but still referred me for mammography. I had biopsy & lesion appeared to be 1.9mm (I have a radiological background). My results appointment with the consultant was 2pm last Tuesday. A letter arrived that day at 1pm detailing all the findings. I was hysterical when I read it. it described more tham 1 lesion, the largest being 10 x 6 cm. Apparently I shouldn't have received that letter until after my results appointment. Also, I wasn't told that I could take someone with me to my appointment. Tuesday was so bad, so cruel. I am now so scared of the MRI results & future treatment.
Please share with ladies that carcinomas are not only lumps that can be felt in the breasts. Sometimes it is only very subtle skin changes.
Hi Mist12 and welcome to the Online Community although I am so sorry to see you finding us and to hear about your BC diagnosis. This is such a challenging and stressful time for you but I do hope you find the community a safe place to get support and ask your questions.
The New to Community area is like our community reception desk where we then can signpost you to our various cancer specific support groups and other services.
I do see that you have joined our supportive Breast cancer group. This will be a safe place to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support.
If you'd like to connect in with a group click on the Green link I have created above. Then once the page opens you can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using). You will then see a dropdown menu so hit ‘Chat’ or ‘New here, say hello’ and you are ready to go.
You could copy and paste the text from this your first post. You can also search through existing ‘Discussions’ and click [reply] if you want to put up a comment.
The Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 or via Webchat and Email too. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear. You may also find our Ask an Expert section helpful but do allow a few working days for a reply.
To find information covering diagnosis, treatments and pages covering most types of cancers check our Online Information and Support Section.
Talking to people face to face can be very helpful but during these strange times it’s not that available but do check to see if any Local Macmillan Support in your area has opened up. Do also check out for a local Maggie's Centre in your area as these folks are amazing.
Always around if you need further help in navigating the community.
All the very best ((hugs))
