Kaposi sarcoma

FormerMember
FormerMember
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I have recently been diagnosed with Kaposi. Still coming to terms with this. I have a number of lesions on my face and neck. Has anybody experienced living with Kaposi? Thanks. 

  • Hi  and welcome to the Online Community although I am so sorry to hear about your diagnosis but I do hope you find the community a safe place to get support and ask your questions.

    The New to Community area is like our community reception desk where we then can signpost you to our various cancer specific support groups and other services.

    I see you have joined our supportive Soft tissue sarcomas group. This will be a safe place to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support.

    If you'd like to connect in with a group click on the Green link I have created above. Then once the page opens you can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using). You will then see a dropdown menu so hit ‘Chat’or ‘New here, say hello’ and you are ready to go.

    You could copy and paste the text from this your first post. You can also search through existing ‘Discussions’ and click [reply] if you want to put up a comment.

    The Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 or via Webchat and Email too. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear. You may also find our Ask an Expert section helpful but do allow a few working days for a reply.

    To find information covering diagnosis, treatments and pages covering most types of cancers check our Online Information and Support Section

    Talking to people face to face can help a lot but during these strange times it’s not that available but do check to see if any Local Macmillan Support in your area has opened up. Do also check out for a local Maggie's Centre in your area as these folks are amazing.

    Always around if you need further help in navigating the community.

    All the very best.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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