New to the site! I am here because of my sister. She was diagnosed with Mediastinal B cell lymphoma in October 2021 and has recently finished her first chemo cycle last month. Oh what a roller coaster she has had thus far! She received the RCHOP drugs where she had to stay in the hospital for 5 days. Just before her last chemo medicine, her drip iv was not staying in her arm because she was swelling in her face and arms due to svoc (superior vena cava obstruction) so it was a delay on receiving the last drug. However, she was able to receive the last meds and just when she thought she had finish, she was tested positive for covid. She was isolated and that really made her depress. She also ran a high fever and caught some type of infection. To date, she is home now and is having problems eating. Her tummy hurts whenever she eats and she suffers from delirium (she talks non-sense alot). She is taking levofloxacin which might be the cause of delirium. Has anyone experienced eating issues and delirium?
Hi Uniquejewel and welcome to the Online Community although I am so sorry to hear about your sisters Non Hodgkin's Lymphoma diagnosis. This is such a challenging and stressful time for all the family but I do hope you find the community a safe place to get support and ask your questions.
I am Mike and I was diagnosed way back in 1999 with a rare, incurable but treatable type ofNon Hodgkins Lymphoma (NHL) Stage 4a so I know this journey well and help out around our various Lymphoma groups.
The New to Community area is like our community reception desk where we can then signpost you to our various cancer specific support groups and other services.
I do see that you have already joined our supportive Non-Hodgkin lymphoma group. This is a safe place to talk to others who may have a similar diagnosis, treatment experience, to ask questions, get support and talk with others who are supporting family and friends on their journey.
If you'd like to connect in with a group click on the Green link I have created above. Then once the page opens you can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using). You will then see a dropdown menu so hit ‘Chat’ or ‘New here, say hello’ and you are ready to go.
You could copy and paste the text from this your first post. You can also search through existing ‘Discussions’ and click [reply] if you want to put up a comment.
I will keep an eye open for you in the group and I can then give you some support on your post and this will also open up your post to a wider group of folks with NHL or those support family with NHL.
((HUGS))
