Hello all,
My name is Josh. I am 25 and I have recently been diagnosed with a Primary Central Nervous System Lymphoma. I just want to reach out and see if anyone else has been through this disease and how they are doing now. Need some help and motivation moving into the next steps of treatment.
Many thanks,
Josh
Hi Josh and welcome to the Online Community although I am so sorry to hear about your diagnosis. I am Mike and I help out around our various Lymphoma groups.
I don't have CNS Lymphoma was diagnosed in 1999 with a rare, incurable but treatable type of NHL Stage 4a so although my blood cancer ‘type’ is different I know this journey well.
The New to Community is like our reception desk where we can signpost you to our various cancer specific support groups and other services so can I recommend that in the first instant you consider joining our supportive Non-Hodgkin lymphoma group. This will be a safe place to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support.
If you'd like to connect in with a group click on the Green link I have created above. Then once the page opens click on the black banner that says [click to join] at the bottom, or the [Join] button under "Group tools."
You can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using). You will then see a dropdown menu so hit ‘Chat’ or ‘New here, say hello’ and you are ready to go.
You could copy and paste the text from this your first post. You can also search through existing ‘Discussions’ and click [reply] if you want to put up a comment.
I will keep an eye open for you in the NHL group.
