Hello,
My mum has battled a very rare form of Peritoneal Mesothelioma for the past 6.5 years. She has had numerous rounds of chemo, radiotherapy, clinical trials and in August 2021 had a major debulking operation. Removal of her large bowel , peritoneum, muscle and then hot chemotherapy into the cavity.
What we thought was a poor recovery ( as she is 70) was actually the cancer becoming aggressive due to the operation . She is incredibly frail, struggles to eat, is sick a lot and generally wasting away before my eyes.
Yesterday it was confirmed she has multiple more tumors in her abdomen, some in her lung and also spread to liver.
Her oncolgist said her gooodbyes and said she wont see her again as its down to palliative care now.
I am devastated.
I have autism and am struggling with the not knowing when it will happen as I very much need routine and control to remain well.
I would appreciate any help in how to function and deal with living in this situation.
Thankyou
Hi Vic and a warm welcome to the online community
I'm very sorry to read about your mum and know what an incredibly tough time this must be for the whole family.
As the online community is divided up into different support groups I'm going to recommend that you join the supporting someone with incurable cancer group where you can discuss your emotions about the prospect of losing your mum as well as practical issues about palliative care.
To join just click on the link I've created and then choose 'click to join' or 'join' (depending on the device you're using) on the page that opens. You can then introduce yourself and post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
If you have any difficulty navigating the community just drop me a reply and I'll be pleased to help
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
