Hi, I joined the group to get support or advice.
Mom was diagnosed with non hodgkins lymphoma on 11th December, we were told it wasn't life threatening.
On 4th Jan she had her first lot of chemo, a week later she was rushed to hospital where she has been since. Last Thursday we were told all treatment would be stopped and nothing else could be done for her.
Can't get my head around the timescales.
I spend 10-12 hours everyday since at the hospital with, its now palliative care, the meds she's now on stop her pain (morphine) and another stops her agitation.
She'll never speak to me again, I'm so heartbroken and in a few days, weeks she will be gone
Hi and a warm welcome to the Online Community although I am so sorry to hear about the speed at which your mum's Non Hodgkin's Lymphoma has developed. Some types of NHLs can be like this. I have lived with low grade NHL for years but High Grade can go like this - I am so sorry.
This is such a challenging and stressful time for you all but I do hope you find the community a safe place to get support and ask your questions.
The New to Community is like our reception desk where we can signpost you to our various cancer specific support groups and other services and when it comes to the practical challenges of supporting someone on their cancer journey you may benefit from joining our supportive Carers only and Supporting someone with incurable cancer groups where you will connect with others supporting family and friends. These are safe places to talk to others who are on the same journey.
If you'd like to connect in with a group click on the Green link I have created above. Then once the page opens click on the black banner that says [click to join] at the bottom, or the [Join] button under "Group tools."
You can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using). You will then see a dropdown menu so hit ‘Chat’ or ‘New here, say hello’ and you are ready to go.
You could copy and paste the text from this your first post. You can also search through existing ‘Discussions’ and click [reply] if you want to put up a comment.
The Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 or via Webchat and Email too. This service provides practical information, emotional support, benefits/financial guidance or just a listening ear. You may also find our Ask an Expert section helpful but do allow a few working days for a reply.
Always around if you need further help in navigating the community.
All the very best ((hugs))
