Hi been advised to join groups to read possibly share my experience, husband end of life care since last Nov only 58,ive been caring for him when diagnosed 18months earlier, needed nursing home support for him, feel guilty I couldn't look after him, also hate seeing him the way he is it's like I've already lost him
Hi and a warm welcome to the Online Community although I am so sorry to hear about your husband and the challenge that this is for you. This is such a stressful time for you but I do hope you find the community a safe place to get support and ask your questions.
The New to Community is like our reception desk where we can signpost you to our various cancer specific support groups and other services.
When it comes to the practical challenges of supporting someone on their cancer journey like this you may benefit from joining and posting in our supportive Carers only and Supporting someone with incurable cancer groups where you will connect with others supporting family and friends during these very difficult times.
The Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 or via Webchat and Email too. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear. You may also find our Ask an Expert section helpful but do allow a few working days for a reply.
Talking to people face to face can help a lot but during these strange times it’s not that available but do check to see if any Local Macmillan Support in your area has opened up. Do also check out for a local Maggie's Centre in your area as these folks are amazing.
Always around if you need further help in navigating the community.
All the very best ((hugs))
