Hi new to the group my son been diagnosed with AML 2weeks ago I can't remember life before leukemia any advise would be appreciated as struggling to come to terms with my sons condition he is so strong and brave we are all putting on a brave face but inside I am crumbling
Hi Aml45 and a warm welcome to the Online Community although I am so sorry to hear about your son’s AML diagnosis. This is such a challenging and stressful time for but I do hope you find the community a safe place to get support and ask your questions.
I am Mike Thehighlander and I help out around our blood cancer groups. I don’t have AML but was diagnosed in way back in 1999 with a rare, incurable but treatable low grade type of NHL Stage 4a so I know this journey rather well.
Delays and blood cancer treatments go hand in hand and this happens a lot. I do understand your concerns but to reassure you I had a number 2-3 week delays over my many years of treatments and these delays made no real significant difference to the outcomes so take a breath.
The New to Community is like our reception desk where we can signpost you to our various cancer specific support groups and other services so can I recommend that in the first instant you consider joining our supportive Acute myeloid leukaemia group. This will be a safe place to talk to others who may have a similar diagnosis, treatment experience, to ask questions, get support and talk with others who are supporting family and friends on their journey.
If you'd like to connect in with a group click on the Green link I have created above. Then once the page opens click on the black banner that says [click to join] at the bottom, or the [Join] button under "Group tools."
You can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using). You will then see a dropdown menu so hit ‘Chat’or ‘Start a Discussion in New here, say hello’ and you are ready to go.
You can also search through existing ‘Discussions’ and click [reply] if you want to put up a comment.
The Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 or via Webchat and Email too. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear. You may also find our Ask an Expert section helpful but do allow a few working days for a reply.
To find information covering diagnosis, treatments and pages covering most types of cancers check our Online Information and Support Section.
Talking to people face to face can help a lot but during these strange times it’s not that available but do check to see if any Local Macmillan Support in your area has opened up. Do also check out for a local Maggie's Centre in your area as these folks are amazing.
Always around if you need further help in navigating the community and I will keep an eye open for you on the AML group ((hugs))
