Hello,
In May 2021 I got diagnosed with bowel cancer, I didn't need any treatment and it didn't spread, I did however though end up with a stoma as my cancer was so low down, they joined my bowel back together and wanted to give it time to heal, this was in June 2021.
I have managed fine with my stoma (apart from the odd accidents) and I am currently going through all the tests to have the reversal, however, I really would like some advice as iv been told my bowel motions will never be the same again, I will have an urgency to go to the toilet, there will be certain foods I can't have etc.
My current situation is, I'm 49 years old, married with 2 daughters in their 20's one of whom is getting g married abroad next year (2023), we do lots of walking, go put for lots of meal, have weekends away and like our holidays. I'm worried if I have the reversal none of this will be as easy for me as it currently is with my stoma... I can literally do anything at all at the moment.
Please could someone give me any advice. I know everyone is different, but I'm in a real dilemma. Thankyou
Hi and a warm welcome to the Online Community although I am so sorry to hear about your journey so far and I do hope you find the community a safe place to get support and ask your questions.
The New to Community is like our reception desk where we can signpost you to our various cancer specific support groups and other services so can I recommend that in the first instant you consider joining our supportive Bowel (colon and rectum) cancer and Ileostomy, colostomy and stoma support groups. These are safe places to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support.
If you'd like to connect in with a group click on the Green link I have created above. Then once the page opens click on the black banner that says [click to join] at the bottom, or the [Join] button under "Group tools."
You can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using). You will then see a dropdown menu so hit ‘Chat’ or ‘Start a Discussion in New here, say hello’ and you are ready to go.
You could copy and paste the text from this your first post. You can also search through existing ‘Discussions’ and click [reply] if you want to put up a comment.
The Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 or via Webchat and Email too. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear. You may also find our Ask an Expert section helpful but do allow a few working days for a reply.
Talking to people face to face can help a lot but during these strange times it’s not that available but do check to see if any Local Macmillan Support in your area has opened up. Do also check out for a local Maggie's Centre in your area as these folks are amazing.
Always around if you need further help in navigating the community.
All the very best.
