My wife has been on sotorasib for 12 weeks now the scans are very positive showing shrinking in lung and bones . However thje side effects are very difficult for her to cope with.
Does any one know how long they last.
SIDE EFFECTS ARE:
jELLY LEGS ,FATIGUE ,COUGH,FREEZING COLD FEET
Hi haring 1982 and a warm welcome to the online community
I'm sorry to read about the side efeects that your wife is suffering from while taking sotorasib.
As the online community is divided up into different support groups I'm going to recommend that you join the lung cancer group which is a great place to ask questions, share experiences and get support about this type of treatment.
To join just click on the link I've created and then choose 'click to join' or 'join' (depending on the device you're using) on the page that opens. You can then introduce yourself and post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
When you feel ready, it would be great if you could pop something about your wife's diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
If you have any difficulty navigating the community just drop me a reply and I'll be pleased to help
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
Hi Boyd1703 and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I'm really sorry to read that sotorasib has not worked for your wife and you have been told that her prognosis is 6 months.
As the community is divided up into different support groups I'm going to recommend that you join the carers only group which is a safe and supportive place to ask other people how they have told difficult news to their loved ones as well as share experiences and get support.
If you'd like to join this group clicking on the link I've created will take you straight there. You can then join the group by choosing 'click to join' or 'join' (depending on the device you're using) on the page that opens, and then start a new post by selecting 'new' or '+'.
It would be great if you could pop something about your wife's diagnosis and treatment so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
If you have any difficulty navigating the community just drop me a reply and I'll be pleased to help
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
