Hello!

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Hi everyone, I found out yesterday that I have thyroid cancer. Did not see it coming as my initial biopsy was clear for cancer! Still processing the news whilst having to tell my family & friends. Despite being cleared of cancer by the first biopsy, I opted to have the lump removed, which in turn resulted in part of my thyroid being removed and a second biopsy. This resulted in the diagnosis and I am now scheduled to have a second operation in the next few weeks to remove the rest of my thyroid and glands. It feels so surreal but I’m counting my blessings that I opted to have the lump removed. My family are asking lots of questions but at this moment I have no clue what I should be asking my consultant, what I need to know to have some perspective or what to expect. My mum for example has gone into panic mode and keeps telling me I must stop eating ANY sugar and no more chocolate! Any advice gratefully received. X

  • FormerMember
    FormerMember

    Hi Rachael 

    I had thyroid cancer 22 years ago, had a huge goitre removed, just 90% of it, it got tested, and was cancer tin the centre, so I had to have the other 10% removed. This wasnt cancerous. I had to have a few days of radiotherapy, this was just a tablet, and had to stay in hospital for a few days as radioactive, it may all be different now, of course,  I’ve been on 200mcg ever since, and have yearly blood tests, the cancer never reappeared, and I’ve always been well. I now have another cancer, different story, but not connected. 
    I never changed my diet at all, as doctor told me to carry on the same, 

    Sending you best wishes . 

    Jane xx 

  • Hi  and a very warm welcome to the Online Community although I am so sorry to hear about your Thyroid Cancer diagnosis. This is such a challenging and stressful time for you but I do hope you find the community a safe place to get support and ask your questions.

    The New to Community is like our reception desk where we can signpost you to our various cancer specific support groups and other services. I do see you have already joined our supportive Thyroid cancer group. This will be a safe place to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support.

    If you'd like to connect in with a group click on the Green link I have created above. Then once the page opens you can introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New (Computers) or + (Mobile Devices). You will then see a dropdown menu so hit ‘Chat or Start a Discussion in New here, say helloand you are ready to go.

    You could copy and paste the text from this your first post. You can also search through existing ‘Discussions’ and click [reply] if you want to put up a comment.

    The Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 or via Webchat and Email too. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear. You may also find our Ask an Expert section helpful but do allow a few working days for a reply.

    To find information covering diagnosis, treatments and pages covering most types of cancers check our Online Information and Support Section

    Talking to people face to face can help a lot but during these strange times it’s not that available but do check to see if any Local Macmillan Support in your area has opened up. Do also check out for a local Maggie's Centrein your area as these folks are amazing.

    Always around if you need further help in navigating the community.

    All the very best ((hugs))

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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  • Thank you Jane. I really appreciate your insight. Blessings, Rachel xx

  • FormerMember
    FormerMember
    1. Hi,mine was breast cancer but my mums had it 20yrs ago ,my older sister 2 yrs ago breast cancer an still taking chemo tabs for ever to keep it at bay,mine I demand to doctor I felt now I needed macectomy, to which found I too had breast cancer,which would had been much worse 12 mth to my next macectomy  ,so yes always ASK its your body,it doesn't bear thinking if you'd not,good luck xxx