Hello all!
I’m new here!
A bit about what brings me here. My beautiful mum had colon cancer in 2019. She had major surgery but it was decided following that that chemo wasn’t necessary. She seemed to be recovering well. Then covid hit and appointments/scans were delayed.
About 6 months ago she was having symptoms of jaundice. She saw the consultant and had multiple scans and tests. It was discovered she had metastatic liver cancer. She had multiple tumours and they were large in size. As it was inoperable she began chemo (folfox). As the course was coming to an end she got quite poorly again, and was very jaundiced. She had a procedure to put a stent in to help drain bile. Whilst they initially thought this was successful, she was readmitted with pancreatitis. The aim was to get her blood results stable enough to try further chemo (folfiri).
She saw the consultant on 30th December and they found the cancer had grown. She was told at that point that there were no further treatment options available. They expect her remaining time to be a matter of a few months.
I am a mum of 5 children, aged from 16 down to 10 weeks. I’m really not coping very well with the thought of losing my mum. The older children are aware of what’s happening and are also finding it very hard.
So I guess I’m just looking to share my story with others who understand and also to ask if you have any advice or ideas for how best to spend our remaining time with her. At the moment I seem to have a million things in my head that I want to do and then I become really low at the thought of not being able to do them.
Im also looking for advice on how best to support both my mum, and my dad, who is utterly devoted to her.
I am struggling with PND too and this just makes everything feel worse.
Thanks so much for reading, if you got this far.
Love and light to all.
Hi and a warm welcome to the online community
I'm sorry to read about your mum's prognosis and I know what a difficult time this will be for the whole family.
As the online community is divided up into different support groups I'm going to recommend that you join the supporting someone with incurable cancer group which is a safe and supportive place to discuss your emotions about the prospect of losing your mum, as well as practical issues about palliative care, with others who will understand what you're going through.
To join just click on the link I've created and then choose 'click to join' or 'join' (depending on the device you're using) on the page that opens. You can then introduce yourself and post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
When you feel ready, it would be great if you could pop something about your mum's diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
If you have any difficulty navigating the community just drop me a reply and I'll be pleased to help
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
