Palliative care

FormerMember
FormerMember
  • 3 replies
  • 24 subscribers
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Hi I wonder if there are any carers on here. 
My mum has NHL & after 11 days in hospital, today a doctor phoned me to tell me she is now on palliative care. I was told she has a matter of weeks! Yo add the cherry to the cake the lady in the bed next to her has tested positive for covid, so I can’t visit. She was due to go to a care home today, but now they won’t take her.

I am devastated beyond words & any advice would be appreciated.

thinking oh getting her home here & get care come in to help me look after her

  • Hi  and welcome to the Online Community although so sorry to hear about your mum's diagnosis, this is such a hard time for all the family but I do hope you will find lots of comfort and support here on the Online Community. 

    I have incurable NHL but am blessed that we have always found the next treatment to keep me in remission.

    The New to Community is like our reception desk where we can signpost you to our many dedicated support groups and services and when it comes to the specific practical challenges of supporting someone on a cancer journey like your mum's you may benefit from connecting in with our supportive Carers only and Supporting someone with incurable cancer groups where you will connect with others supporting family and friends

    If you'd like to connect in with a group click on the Green link I have created above. Then once the page opens introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New  (Computers) or + (Mobile Devices). You will then see a dropdown menu so hit ‘Start a Discussion in New here, say hello’ and you are ready to go.

    You could copy and paste the text from this your first post. You can also search through existing ‘Discussions’ and click [reply] if you want to put up a comment.

    The Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 or via web chat. This service provides cancer information, emotional support, benefits and financial guidance or just a listening ear.

    Always around if you need further help in navigating the community.

    All the very best ((hugs))

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • FormerMember
    FormerMember

    My dad has stage 4 liver, bladder, prostrate cancer he went in hospital were i wasnt allowed to visit at all, so I said bring him home il look after him, but please don't make that mistake unless you have alot of help, only let her come home once her care is in place it can take over a week to sort but keep nagging them, i was left no meds no care help nothing for six days and with no sleep it was hard going xx good luck and wish your family strength and hope xx

  • Hi and a warm welcome to you but sorry to hear about your dad.

    As I highlighted above do consider connecting in with our supportive Carers only and Supporting someone with incurable cancer groups as you will connect with many people walking the same journey supporting family and friends.

    The Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 or via Webchat and Email too. This service provides cancer information, emotional support, benefits/financial guidance or just a listening ear. You may also find our Ask an Expert section helpful but do allow a few working days for a reply.

    Always around if you need further help in navigating the community.

    All the very best ((hugs))

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge