Hi there hope that all in good spirit well as much you can.
I dont have my diagnoses yet but been tested for Melanoma very Nodules at bottom spine had various MRI and CT scans Lumber puncture Mole removed etc...
In 2020 i had a Tumour removed from L1L2 on mu spine which was Melanocytoma ( Benin ) this tumour is localised but where it grows it is aggressive which is followed up by MRI scans and a growth has started again about 9 month later but this time extensive nodules on T1 T2 lower part of my spine ....
i been referred from Neurology to Ontology and been told they look into Radiotherapy , still waiting for results from tests and that this Melanocytoma on very
rare occasion can turn itself into Melanoma .
Hi and welcome to the Online Community although so sorry to hear about your ongoing journey, this is such a hard time for you but I do hope you will find lots of comfort and support here on the Online Community.
The New to Community is like our reception desk where we can signpost you to our many dedicated support groups and services so can I recommend you start by joining our Melanoma group. This is a safe place to talk to other people who may have a similar diagnosis or treatment experiences.
If you'd like to connect in with a group, you need to join the group. First click on the Green link I have created above. Then once the page opens click on the black banner that says [click to join] at the bottom, or the [Join] button under "Group tools."
You can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New (Computers) or + (Mobile Devices). You will then see a dropdown menu so hit ‘Start a Discussion in New here, say hello’ and you are ready to go.
You could copy and paste the text from this your first post. You can also search through existing ‘Discussions’ and click [reply] if you want to put up a comment.
The Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 or via web chat. This service provides cancer information, emotional support, benefits and financial guidance or just a listening ear.
To find information covering diagnosis, treatments and pages covering most types of cancers check our Online Information and Support Section.
Always around if you need further help in navigating the community.
All the very best.
