I've suffered with polycythemia vera for a good few years now my last blood test was not what it should have been & now when I go fishing putting my waders is a pain I mean a pain my feet just cramp up same with my hands especially my fingers this has only started this year is this part of my problem
Hi The fly fisherman and a very warm welcome to the online community
I'm sorry to read about the problems you're currently experiencing.
As the online community is divided up into different support groups I'm going to recommend that you join and post in the myelodysplasia & myeloproliferative neoplasms group which is a great place to chat to others who have polycythaemia vera.
To join just click on the link I've created and then choose 'click to join' or 'join' (depending on the device you're using) on the page that opens. You can then introduce yourself and post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
It would be great if you could pop something about your diagnosis and treatment so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
If you have any difficulty navigating the community just drop me a reply and I'll be pleased to help
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
