Hi, I am Jo. I recently moved back home with my Dad to care for him, leaving my husband and son holding the fort at ours. Dad was discharged on a weekend and we have somehow managed to get through that weekend. I had no idea about catheters and had minimal training on PEG tubes. Anyone else feel out of their depth!? I have no idea how long Dad has left. I am feeling somewhat overwhelmed. Just hoping someone out there can relate..? Xxx
Hi Jo and welcome to the Online Community although so sorry to hear about your dad’s diagnosis, this is such a hard time for all the family but I do hope you will find lots of comfort and support here on the Online Community.
The New to Community area is like our reception where we can signpost our many dedicated support groups and services so can I recommend you start by joining our Head and neck cancer group. This is a safe place to talk to other people who may have a similar diagnosis, treatment experiences or are supporting someone on their cancer journey.
If you'd like to connect in with a group, you need to join the group. First click on the Green link I have created above. Then once the page opens click on the black banner that says [click to join] at the bottom, or the [Join] button under "Group tools."
You can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New (Computers) or + (Mobile Devices). You will then see a dropdown menu so hit ‘Start a Discussion in New here, say hello’ and you are ready to go.
You could copy and paste the text from this your first post. You can also search through existing ‘Discussions’ and click [reply] if you want to put up a comment.
When it comes to the specific practical challenges of supporting someone on their cancer journey you may benefit from joining our supportive Carers only group and our Supporting someone with incurable cancer group (that I see you have joined) where you will connect with others supporting family and friends
The Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 or via web chat. This service provides cancer information, emotional support, benefits and financial guidance or just a listening ear.
To find information covering diagnosis, treatments and pages covering most types of cancers check our Online Information and Support Section.
Always around if you need further help in navigating the community.
All the very best ((hugs))Hi
