Essential thrombosis (ET)

FormerMember
FormerMember
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Hi all I would just like people experiences with ET if they kindly would like to share I have been diagnosed and started on interferon.

  • Hi  and a warm welcome to the Online Community although so sorry to hear about your ET diagnosis but I do hope you will find lots of comfort and support from people who understand here on the Online Community. 

    The New to Community area is like our reception where you can be signposted on to our many dedicated support groups so can I recommend you start by joining our MDS/MPN/ET/PV/myelofibrosis (MF) group. This is a safe place to talk to other people who might have a similar diagnosis or treatment experience.

    If you'd like to connect in with this group, you need to join the group. First click on the Green link I have created above. Then once the page opens up click on the black banner that says [click to join] at the bottom, or the [Joinbutton under "Group tools."

    You can then introduce yourself by putting up a new post by clicking in the box near the top right with + New (Computers) or + (Mobile Devices). You will then see a dropdown menu so why not hit Start a Discussion in New here, say hello’. You can also search through existing ‘Discussions’ and click [reply] if you want to put up a comment.

    It’s always good to talk so do call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear. You may also find our Ask an Expert section helpful as well.

    To find information covering diagnosis, treatments and pages covering most types of cancers check our Online Information and Support Section

    Talking to people face to face can indeed help a lot but during these strange times it’s not that available but do check to see if you have any Local Macmillan Support in your area has opened up. Do also check out for a local Maggie's Centre in your area.

    Always around if you need further help in navigating the community.

    All the very best.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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