Hi all
firgive me if I’m not doing this in the right place. Just wanted to say hi and explain that my husband has been diagnosed with the most aggressive form of bladder cancer having survived it back in 2018. He suffered a stroke 8 weeks ago and we found the cancer off the back of the stroke. Bladder removal isn’t an option because they say he won’t survive the op because of the stroke. Very very hard to deal with.
Hi and a warm welcome to the Online Community although so sorry to hear about your husbands diagnosis, this is such a hard time for all the family but I do hope you will find lots of comfort and support from people who understand here on the Online Community.
The New to Community is like our reception where you can be signposted to our many dedicated support groups so can I recommend you start by joining our Bladder cancer group. This is a safe place to talk to other people who might have a similar diagnosis, treatment experience or are supporting someone on their cancer journey.
If you'd like to connect in with this group, you need to join the group. First click on the Green link I have created above. Then once the page opens up click on the black banner that says [click to join] at the bottom, or the [Join] button under "Group tools."
You can then introduce yourself by putting up a new post by clicking in the box near the top right with + New (Computers) or + (Mobile Devices). You will then see a dropdown menu so why not hit ‘Start a Discussion in New here, say hello’
You could copy and paste the text from this your first post. You can also search through existing ‘Discussions’ and click [reply] if you want to put up a comment.
When it comes to the practical challenges of supporting someone you may benefit from joining our supportive Carers only and Supporting someone with incurable cancer groups where you will connect with others supporting family and friends
It’s always good to talk so do call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear. You may also find our Ask an Expert section helpful as well.
Talking to people face to face can indeed help a lot but during these strange times it’s not that available but do check to see if you have any Local Macmillan Support in your area has opened up. Do also check out for a local Maggie's Centre in your area.
Always around if you need further help in navigating the community.
All the very best ((hugs))
We are always around to help you get connected in, sending you supportive ((hugs))
