Hi everyone. So pleased I found this group. Daughter was diagnosed with rare (due to her age) cancer of the vulva 2 months ago. Surgery to remove it was successful and the lymph nodes were clear but to make sure her Oncologist is taking the belt and braces option starting on 13 Decrmber 2021 with radiotherapy 5 minutes per day, 5 days a week for 5 weeks and one full day of chemo for each those 5 weeks. I am looking for advice on how to support her with the side effects - have already started putting together a pamper pack recommended by MacMillan but wondered if anyone has found other remedi which might help. I would be most grateful for any suggestions. Thanks so much
Hi Mrs Sparkle and a warm welcome to the online community
I'm sorry to read that your daughter has been diagnosed with vulva cancer but putting together a pamper pack sounds like a great idea.
The online community is divided up into different support groups so I'm going to recommend a few for you to join. The first is the vulva cancer group which is a great place to ask questions and share experiences about that type of cancer and treatment.
You might also like to join the carers only group, if you are your daughter's carer, or the family and friends group if you're not. Another group for you to consider is the parents of children with cancer group. All of these are safe and supportive places to discuss your worries and emotions.
I'm sure the members of all these groups will be able to come up with ideas for your pamper pack.
To join any or all of these groups just click on the links I've created and then choose 'click to join' or 'join' (depending on the device you're using) on the page that opens. You can then introduce yourself and post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
It would be great if you could pop something about daughter's diagnosis and treatment so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
If you have any difficulty navigating the community just drop me a reply and I'll be pleased to help
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
