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FormerMember
FormerMember
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Hi All

Shawn here. Just wanted to introduce myself. Diagnosed with NHL in June and have been through 6 cycles of RCHOP and my first (of two) high dose methotrexate treatments. Had a PET scan after my RCHOP cycles which showed “complete metabolic response” and no active lymphoma. Sounds positive thus far but I know there’s still some way to go and these things can return so taking each day at a time.

RCHOP was okay for me. Hair loss, bit of tingling fingertips, acne after first one but went away, sore mouth after first one but went away. So I can’t grumble. 

Methotrexate I had a few days ago and feeling that a bit more. Sore mouth. Fatigued. Itchy skin. Worse but was being in hospital for 5 nights where I could not sleep because of disturbances - don’t think that helps but also realise it can’t be helped. Glad to be home and had a couple of nights sleep in my own bed.

Just wanting to get second methotrexate session over with (10th December) so I can then try and look to the future.

just wanted to say Wave.

Shawn

  • Hi  and a warm welcome to the Online Community but so sorry to see you joining but I do hope you will find lots of comfort and support from people who understand here on the Online Community. 

    I am Mike  and I help out around our Lymphoma groups. I see you have joined our Diffuse large B-cell lymphoma group. This is a safe place to talk to other people who might have a similar diagnosis or treatment experience.

    If you'd like to connect into the group click on the Green link I have created above. Then you can then introduce yourself by putting up a new post by clicking in the box near the top right with + New (Computers) or + (Mobile Devices). You will then see a dropdown menu so why not hit Start a Discussion in New here, say hello’

    You could copy and paste the text from this your first post. You can also search through existing ‘Discussions’ and click [reply] if you want to put up a comment.

    I will keep an eye open for you.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • FormerMember
    FormerMember in reply to Thehighlander

    Thanks Mike - will do.