Hi everyone I’m Kerry
I have been diagnosed with a very large inoperable brain tumour which has only come to light due to a seizure.
For the last six months my mental health was suffering, I had anxiety etc which I put down to the pressures of covid and my job but otherwise I was living a completely normal relatively healthy life working out 5 times a week socialising just a normal 44 year old existence (except I don’t have kids) insanely since iv been told about the tumour my anxiety has gone it’s like my brain was trying to tell me something!!!!!!
Im having a biopsy Wednesday to establish grade but everything is pointing to 2 which hopefully means watch and monitoring but here’s where it’s gets tough for me to understand because other than having to take anti seizure meds and give up my licence I don’t really get if my life will or need to change. I also still feel 100% fit as a fiddle and can’t wait to start exercising again etc (have to be careful of more seizures at present) everything just feels so surreal and when people ask how I am I’m constantly saying fine because I think I am does anybody else have experience like this that can help guide me?
The only other symptom I’m having is not being able to sleep but I guess that will fix itself eventually??
thank you to anybody that reads this just writing it down has helped a little
Hi KT44 and welcome to the Online Community but so sorry to hear about your diagnosis and the challenges you are facing but I do hope you will find lots of comfort and support from people who understand here on the Online Community.
The Community has many dedicated support groups and I see you have joined our Brain tumours group, you may find our Living with incurable cancer - incurable patients only group helpful as well. These are safe places to talk to other people who might have a similar diagnosis or treatment experience.
I have lived with my incurable blood cancer for over 22 years now, it’s all about not letting our cancer define us, more we take control and define our own journey.
If you'd like to connect into this groups, you need to join the groups. First click on the Green link I have created above. Then click on the black banner that says [click to join] at the bottom, or the [Join] button under "Group tools."
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It’s always good to talk so do call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.
To find information covering diagnosis, treatments and pages covering most types of cancers check our Online Information and Support Section.
Talking to people face to face can indeed help a lot but during these strange times it’s not that available but do check to see if you have any Local Macmillan Support in your area has opened up. Do also check out for a local Maggie's Centre
Always around if you need further help in navigating the community.
All the very best.
